Empowering dialysis users and caregivers
Global Dialysis updates
All the Global Dialysis news and views go here - we're looking forward to your comments.
Meeting some of the patients was a real highlight - this took me back to my nursing days in the transplant unit at Barts - the only difference there was that people were receiving a new kidney. I was overwhelmed with the sense of boredom and "ground hog" day that kidney dialysis users must feel.
One man commented to me "This has ruined my life" - I found this quite humbling - Russ and I have been working so hard on the site and driving to get it out - this was good for me because it challenged and reminded me to remember why we are doing this, to support and help dialysis users who live and breathe this every single day of their lives.
It was great to meet him as we had communicated often when I first set up Global Dialysis. Dr Fadem created http://www.nephron.com in 1996 a website for nephrology. He was a great help in the beginning and very enthusastic about our website. Really pleased I meet him in 2006, he is a jolly chap!
Oh and he very kindly awarded Global Dialysis with the Golden Nephron Award 2000 for "sites that have advanced the field of nephrology through the Internet."
Dunedin Dialysis Centre provides a full range of dialysis services: in centre hemo, pd and home support as well as helping patients in that critical time, post transplant. The centre first joined Global Dialysis in 2007, but with 9 stations, and not much dialysis provision across NZ, it's wise to plan as far ahead as you can to be able to get a a slot. The centre says 2 months booking is ideal - but we recommend, as with any trip on dialysis, plan well ahead.
I visited New Zealand a few years ago and know from personal experience that this area of the world can be very exciting.· You are so near the outdoor adventure mecca of Queenstown - I can recommend the Shotover Jet, White Water Rafting and flying over the mountains in the smallest of places to Milford Sound - probably one of my top ten spots.· I must admit to chickening out of the bungee though at the famous AJ Hacketts!
If you're on dialysis then the Dunedin Centre is a great one for you if you're planning a trip. They're well equipped to help you relieve the boredom with a TV, radio and DVD - you just need to supply a full dialysis history, medical history, blood results, current dialysis prescription, medical letter (referral) and a test for VRE.
Contact is Maree MacDonald on telephone + 64 3 470 9345. (login for more contact details).
Have you visited this centre? If so please write us a review and if you plan a trip there - do let them know you heard about them here!
I was pleased to see this come through the wire this morning - I wonder how many dialysis users are out there with more than 25 years under their belts? If you have been on dialysis for more than 25 years please let us know, we'd love to meet you!
The American Association of Kidney Patients (AAKP), which for more than 40 years has championed the cause of improving the lives of fellow kidney patients, is honored to partner with Fresenius Medical Care North America (FMCNA), the nation’s leading network of dialysis facilities, in its Quarter Century Patient Recognition Program. The program recognizes FMCNA patients who have been on dialysis for 25 years or more.
“This program is a beacon of hope for the thousands of dialysis patients in this country,” stated AAKP President Carolyn Price. “It shows fellow patients and the community at large that there is life after a kidney disease diagnosis. Not only is there life, there is quality of life. These are strong, willful individuals who are dedicated to their treatment, well-being and overall health.”
"It's a great pleasure to honor the courage and persistence of these patients who have successfully coped with the rigors of dialysis for 25 years or more, and who have had an unwavering commitment to their frequent dialysis schedule. It is a testament to their strength, family support, and a dedication to having an active lifestyle, healthy diet, and working closely with their health care team," said Raymond Hakim, MD, chief medical officer at FMCNA. "This personal commitment to their health, combined with advancements in medical and technological tools, prove that patients can live long and healthy lives while on dialysis."
Dialysis is a life sustaining treatment for nearly 400,000 Americans with kidney failure. The majority of patients are treated at dialysis centers, where their blood is pumped through a machine the size of a small refrigerator. A special filter removes harmful wastes, extra salts and fluids. The process helps control blood pressure and maintains a proper balance of chemicals, such as potassium and sodium. There is no cure for kidney disease.
“AAKP is pleased to partner with Fresenius Medical Care in this special program,” said AAKP Executive Director Karen Ryals. “AAKP believes that patients who are active in their healthcare can and do live long productive lives. These patients are a testament to that belief.”
Here in the UK we have an annual award called the Pride of Britain. It honours the unspoken heroes of Britain.
I watched it on TV last night, there were tears as always with these type of things. But there was one remarkable woman that stood out for me.
Dr Allison John was born with cystic fibrosis. Her liver failed when she was 14, it was two years before a donor was found. By 18, her lungs and heart had to be transplanted, donating her own heart in the process. She vowed to repay the medical world, so decided to train to be a doctor and went to medical school. But then in 2005 she had kidney failure. Her dad was a match, so she had a live kidney - making medical history by becoming the first person in Britain to have all major organs transplanted. She still went back to medical school, and after and qualified as a doctor this year.
She received a "special recognition" award and now works a junior doctor at Nevill Hall Hospital in Aberganny, Wales
Are you struggling to find the right staff for your dialysis unit? If so help is at hand. We are visited by thousands of dialysis staff and are the ideal place to advertise your vacancy - or indeed start looking for a new job!
Global Dialysis is supporting moves towards greener nephrology as the 7th key element in a responsible quality management plan for dialysis centres. Adopting green nephrology policies within units can drastically reduce waste, take out costs increase productivity, energise dialysis users as well as reduce the carbon footprint of your unit.
We attended the Green Nephrology Summit in Birmingham UK on 24 September and were inspired to get behind the movement to help drive sustainability and the knock on benefits this brings for dialysis units and their patients. This is some of what we learned:
AMERICAN ASSOCIATION OF KIDNEY PATIENTS PARTNERS WITH ARIZONA HEART FOUNDATION AND ARIZONA KIDNEY DISEASE & HYPERTENSION CENTER TO HOST KIDNEY EDUCATION SEMINAR, SATURDAY, OCTOBER 9, 2010 @ ARIZONA HEART FOUNDATION
Tampa, FL, – The American Association of Kidney Patients (AAKP) has joined efforts with the Arizona Kidney Disease and Hypertension Center and the Arizona Heart Foundation to host its Kidney Beginnings: Live seminar in Phoenix Saturday, October 9th from 9:00 a.m. – Noon at the Arizona Heart Foundation (1910 East Thomas Road, 2nd Floor, Phoenix, AZ 85016). To register for this FREE event, or for more information, please call AAKP at (800) 749-2257 or register online at www.aakp.org/events/KB-Live/phoenix. Kidney appropriate refreshments will be served. The supported activity is sponsored by an educational donation provided by Amgen, Inc and Abbott Pharmaceuticals.
By popular demand we have republished the first in our series of phrase cards. These were first published on our site shortly after the launch of www.globaldialysis.com and have been an invaluable tool for dialysis users across the globe ever since.