Saturday, 20 November 2010 06:32

How many times do you have to get it done?

Written by  Kamal Shah
Rate this item
(2 votes)
I was asked this question in the pool today. It was with regard to dialysis. My fistula of course, is a dead giveaway. It inevitably leads to stares and then when the curiosity becomes uncontrollable, the question comes.

"If you don't mind me asking, what is that on your left upper arm?"

"You know what that is? That is none of your fucking business!" Of course I say that only in my mind. I mean, I have limited time in the pool. I would honestly rather enjoy the blue water with the winter sun shimmering on the surface rather than get into the details about dialysis. But then, I have not become rebellious enough to say that.

"That is a fistula and it is used for dialysis. I am Kamal and I am on dialysis. Hello!"

After the usual comments about how someone so young (I am only 25, remember?) could be on dialysis, the question about number of times usually comes, especially if they know a friend of a relative of a friend who is on dialysis.

Then comes the classical dilemma for me. How do I answer that question? How many times do I have to get it done? I get it done daily, for seven to eight hours. If I tell them that without any explanation however, they will surely need dialysis themselves soon because of the shock. And the question is how much dialysis I need, not how much I am getting!

Looking at it from a lay person's perspective, I have to get it done about once in a week actually. I can survive for a few months with that frequency. But then, I obviously don't want to get down to why that is really, really bad for the heart, the blood counts, the nerves and all. So, that brings me to thrice a week. Barely enough dialysis. But I have to get it done with that frequency to have some hope to last a few years.

However, in the end, my basic instinct to spread the word about more frequent dialysis takes over and I get into the details of how most people do it twice or thrice a week but I do it daily because it enables me to lead a life as close to normal as possible. Soon, I can sense it becoming information overload because I also go on to explain how daily dialysis brought my hemoglobin up, took care of my left ventricular dysfunction, totally cured my restless legs syndrome and damn it, enables me to swim every day and work full time!

Most people decide to call it a day and get out of the pool and I go back to my swimming.





... http://www.kamaldshah.com/2010/11/how-many-times-do-you-have-to-get-it.html

Kamal Shah

Kamal Shah

Hello, I'm Kamal from Hyderabad, India. I have been on dialysis for the last 13 years, six of them on PD, the rest on hemo. I have been on daily nocturnal home hemodialysis for the last four and half years. I can do pretty much everything myself. I love to travel and do short weekend trips or longer trips to places which have dialysis centers. Goa in India is a personal favorite. It is a great holiday destination and has two very good dialysis centers.

E-mail: This e-mail address is being protected from spambots. You need JavaScript enabled to view it

2 comments

  • Comment Link Ravi Monday, 10 September 2012 16:28 posted by Ravi

    Indeed you are an inspiration.....for all those people who are out there on dialysis....life is not how long we have lived...life is something how much we lived every moment of it...

  • Comment Link Samir Das Saturday, 18 February 2012 14:33 posted by Samir Das

    great inspiration.. keep it up brother...

Leave a comment

Make sure you enter the (*) required information where indicated.
Basic HTML code is allowed.

Share |
Copyright © 2017 Global Dialysis. All Rights Reserved.