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Stories from the dialysis comunity across the globe.



Dialysis helps bring Martin back from the brink - Cumberland News Now PDF Print

“I have to admit I was ready to give up. My health was getting worse and I was spending a lot of time in the hospital. There was a time when the doctors didn’t think I was going to make it and I was ready to go,” the 65-year-old Martin said. “My daughter convinced me that I had a lot to live for and that if I didn’t want to live for myself, I had to do it for my grandkids.”

Martin, a former correctional officer, was a longtime trainer with the Amherst CIBC Wood Gundy Ramblers. But his health started to deteriorate several years to the point he could no longer walk, was having difficulty breathing and was in heart failure.

He started seeing a specialist in Moncton four years ago, but his condition continued to deteriorate. He was putting on weight as his body filled with fluid. He couldn’t walk a few feet with running out of energy and had so many ulcers on his legs that walking anywhere was torture.

“I remember going to outpatients one night and I thought I wasn’t going to make it. Dr. (Brian) Ferguson was on call that night and he bluntly told me that I wasn’t dying on his watch. He said I was in congestive heart failure and immediately sent me by ambulance to see a specialist,” Martin said.

Martin said he never knew his kidneys were in bad shape and assumed the fluid retention was because of the medication he was on for his lungs. He said doctors always told him he had to stop eating so much, but he wasn’t eating very much. He was so full of fluid that it was coming out through his skin.

Being in diabetes-related kidney failure, Martin’s prognosis wasn’t good. However, once he started dialysis he started feeling better and the fluid started being flushed from his body.

“I started last June and I have admit that I was a little nervous about it,” he said. “I knew people who were on dialysis and some who didn’t make it. I remember Dwight Jones’ wife and Norman Lee were on dialysis and I was afraid.”

He goes to Moncton three times a week for five hours of dialysis. He passes the time watching television or snoozing.

Martin said staff in the dialysis unit at the Georges Dumont Hospital in Moncton have been wonderful and he’s come to know a number of patients who have benefitted from the Kidney Foundation.

March 12 is World Kidney Day. The Kidney Foundation is encouraging everyone to drink a glass of water to celebrate their kidneys.

For the body to work properly, it must contain the right amount of water. One of the important jobs of the kidneys is to remove excess water from the body or to retain water when the body needs more.

One in 10 Canadians has kidney disease. Millions more are at risk and each day an average of 15 people are told their kidneys have failed.

The two leading causes of kidney failure are diabetes and renal vascular disease, including high blood pressure.

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Twitter: @ADNdarrell

 

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Celebrate National Kidney Month by Supporting Bipartisan Kidney Care ... - Roll Call PDF Print
Roll Call
While many seniors — particularly those with multiple co-morbidities — rely on Medicare Advantage plans to coordinate their care, Medicare beneficiaries who develop ESRD are prohibited from enrolling in an MA plan. If we want health care delivery to ...
Complementary Senate and House bills introduced would improve lives of

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$15K for Rota dialysis patients - Marianas Variety PDF Print

$15K for Rota dialysis patients

A LOCAL measure appropriating $15,000 to Rota residents undergoing dialysis or treatment for terminal illnesses is now law after Gov. Eloy S. Inos signed it yesterday.

The funding source of House Local Bill 19-1, now Rota Local Law 19-1, is the local license fees collected from the island’s poker and pachinko slot machines.

Rep. Glenn Maratita, the bill’s author, said there are about 18 patients from Rota in medical referral program and are undergoing dialysis treatment while there are around 27 patients undergoing treatment for terminal illnesses.

They are categorized as patients A, B, C and D

Category A patients will receive $500 each while B patients will receive $200 each.

Patients C and D will receive $500 and $200 each respectively.

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The money just isn't there - The Elsberry Democrat PDF Print

Posted on Wednesday, March 4, 2015 at 10:29 am

E.S.R.D. Commissioner Joel Conderman

E.S.R.D. Commissioner Joel Conderman

For some time now The Elsberry Democrat has been reporting on the efforts of Jim Hale, Larry Lehmkuhl and other residents of Ehmler Acres with regard to getting at least a portion of Ehmler Lane, the roadway running through the center of their neighborhood, either asphalted or chip and sealed.

Those efforts gained momentum at the February 2015 meeting of the Elsberry Special Road District [E.S.R.D.] when Hale and Lehmkuhl requested that the E.S.R.D. commissioners grandfather Ehmler Lane into the budget for 2015’s road work, due to the fact that they have been asking for a new road surface since several years prior to the board’s adoption of Lincoln County’s policy with regard to road work and maintenance.

That policy dictates that roads are maintained as per their current surfaces only, unless residents living on those roads pay 50 percent of the expenses related to upgrading to either asphalt or chip and seal.

The board left Hale and Lehmkuhl with the impression that their request would be considered.

However, the district’s attorney, Wendy J. Corley, advised the commissioners that they had a second option open to them.

She stated that if the board was in agreement they could vote to step away from their adherence to Lincoln County’s policy and simply choose to pave Ehmler Lane irregardless.

The board took no action at their February meeting, but E.S.R.D. Commissioner Joel Conderman said the possibility of paving Ehmler Lane has created a huge amount of controversy and has other residents beating down his door in an attempt to get their roads paved as well.

“I want to calm those waters and let the residents of the district know that their voices and their concerns are being heard,” said Conderman.

Conderman said he has been doing some research and has not yet been able to pinpoint the exact moment at which the E.S.R.D. adopted Lincoln County’s policy, nor has he found a paper trail to document the claim that Ehmler Acres residents have been requesting a paved road since prior to that point.

“In fact, I’ve had four or five residents come to me since the previous article was published in the newspaper and they brought four different roads to my attention,” said Conderman. “They all claim to have made requests for a paved road before we adopted the county’s policy. I’ve been able to loosely substantiate three of those claims based on information provided to me verbally but there isn’t any paperwork to back up any of them.”

That, according to Conderman, isn’t even the real problem.

“They said they requested it and I choose to believe them,” said Conderman. “The problem is that we now have multiple roads with residents who are asking us to grandfather them in. After this article appears there may even be more.”

Conderman said that instead of just refusing those requests he wanted to do a little homework and share some numbers with district residents so they can see why the E.S.R.D. has adopted the county’s policy and needs to adhere to it.

“It really comes down to cost,” said Conderman. “The first time the district paved any roads was in 2000. Back in those days we were paying $22.50 per ton for asphalt. In 2014 asphalt was $44.50 per ton. That means the cost of asphalted and chip and sealed roads has doubled over the years so it now costs much more for us to pave roads than it did in the past.”

There’s more bad news, however.

“In my research I found that the E.S.R.D. currently has approximately 30 miles of road that is either asphalted or chip and sealed,” said Conderman. “Many of the roads that were once just asphalted have since been chip and sealed to help keep the weather out of the cracks because we can’t afford to add more layers of asphalt to roads that already have an asphalt surface.”

According to Conderman, that puts the E.S.R.D. in a precarious position.

“If you take that 30 mile figure and you look at 2014 costs you’re looking at approximately $20,000 per mile,” said Conderman. “I took the 30 miles that we currently have and estimated that they would all go five years without needing repair and maintenance. That would mean that we would have to do six miles of road every year just to simply maintain the asphalt and chip and seal roads that we already have.”
Conderman said that at $20,000 per mile the district would have to spend $120,000 per year every year just to keep up the status quo, and that’s at last year’s prices.

The 2015 budget for asphalt is only $100,275.

“At these current numbers and if nothing changes drastically in our budget for the better, I can foresee a time in the future when we will be faced with the possibility of letting certain roads go back to gravel,” said Conderman.

Put simply, since on paper the E.S.R.D. is going to have enough trouble maintaining the paved roads it already has, Conderman said he doesn’t see any way that new paved roads can be added to the list, whether it’s Ehmler Lane or any other surface in question.

“It’s just the situation that we’re in,” said Conderman. “Fairness doesn’t really have anything to do with it.”

Although Conderman said he tries to always see the positive, he admitted that he had even more bad news.

Due to increases every year in the district’s operating costs, Conderman said he sees no way the E.S.R.D. can afford to pave new roads even if residents are able to come up with 50 percent of the related expenses.

“We’re really going to have a problem if people start coughing up that money,” said Conderman. “People don’t realize that even if the district doesn’t have to pay 100 percent of the initial paving cost we’re responsible for all of the maintenance and upkeep forever after.”

Given the fact that the E.S.R.D. spent $14,000 on salt alone in 2014, Conderman said paving more roads is just not a financially viable option.

“On paper I don’t see how it can be done,” said Conderman. “These aren’t my opinions. They’re just the numbers. They’re the facts. Basically, we simply don’t have the resources to pave any additional roads.”

Conderman also responded to claims that the E.S.R.D. has not investigated alternative sources of funding.

“We have looked at additional resources in the past with regard to generating increased revenue,” said Conderman. “Since 1993 the district has obtained over $390,000 from FEMA and other sources.”

Conderman said the district currently has two CDs valued at $100,000 each and he knows a lot of residents would like to see those cashed in so that their roads can be paved, much like the E.S.R.D. did last year in order to pay for the work done on Old Hwy. 79 and Hatfield Road.

“We’re a responsible road district,” said Conderman. “We have five major pieces of equipment and $200,000 wouldn’t replace even two of those pieces of equipment or cover the cost of a bridge that went down and needed to be replaced. It’s important for us to have reserves.”

Conderman pointed out that the E.S.R.D. budget in 2000 was approximately $430,000.

By the year 2007-2008 that budget had increased to approximately $694,000, which allowed the district to perform a lot of extra work that had previously not been possible.

Due to a consistently stubborn economy, however, the overall budget for 2015 is only $588,000 and some change.

“We’ll find a way to make it work,” said Conderman. “I’m proud of what we’ve accomplished so far and we’re going to continue to do the best we can with what we have.”

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Barrington group collecting support for dialysis clinic - Shelburne County Coastguard PDF Print

Spokesperson for the group, Lee Goreham-Smith, made the presentation before a packed council chamber expressing the concerns of the Dialysis Support Group.

“For the past two and a half years, I have witnessed first-hand the emotional, physical and financial demands which are placed on dialysis patients from this municipality,” said Goreham-Smith.

She said travelling for two hours three times a week for four-hour dialysis sessions is too much for already health-compromised citizens.

“I cannot begin to imagine the huge burden that this creates when one has to spend two hours of the day, three times per week driving for a four hour treatment in order to remain alive for the other four days of the week,” she said. 

She said dialysis needs are increasing by seven percent each year in Nova Scotia.

Her experience with dialysis is quite personal as her husband is one of the many dialysis patients in the Barrington area.

He had to leave home during a storm to travel to the closest dialysis unit in Yarmouth at 3:30 a.m. to make his 7 a.m. appointment.  Shortly after leaving in the whiteout conditions, he ran into a snow bank.

Last year he accidently drove the wrong way up the exit in Tusket nearly getting into a head-on collision.

“These are just two examples,” said Goreham-Smith.  “I am sure that the other dialysis patients have their own stories of danger.  Having needs of the Barrington Municipality ignored by the Nova Scotia Department of Health and Wellness is totally unacceptable.”

She asked council to “aggressively lobby” to the Nova Scotia Department of Health and Wellness to include a satellite dialysis clinic in their Nova Scotia Capital Budget for the 2015-16 year.

She will also be collecting any letters of support to deliver to the Department of Health and Premier Stephen McNeil.

MLA for Argyle-Barrington, Chris d’Entremont said with a large health clinic space already existing in Barrington Passage, opportunities exist for a solution.

“A competent government would utilize the space in Barrington Passage,” he said.

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