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For me, every Monday starts a new week with the needle brothers (needles are definitely male).  So I thought it would be interesting to get close up and personal with the mechanics of needle access each time I connect to the machine.

I am a little different from most, in that I connect up 5 days per week, starting early (7am) on Monday, with afternoons on Tuesday, Wednesday and Thursday, and then another early start on Saturday.  And since I use the buttonhole technique, both my Needle Brothers are blunt and go into the same access holes (almost) every time.  Non-intuitively, there seems to be no ill effect on the strength of the fistula wall (but I am always watching…).

For each hole I clean the area thoroughly, coat it with antiseptic (Betadine) and start to remove the scab using a sharp 19 gauge poking needle.  There is a trick here.  Because the scab is being constantly removed before the hole has a chance to heal, it tends to grow back a little more aggressively each time.  It begins thick and proud and easily lifted off, but after about day 4, it grows back low and thin and tightly attached, especially if I have pushed the needle fully into the hole with the collar hard against the skin.  For some reason best known to the scab, it then grows back concave, into the cavity formed by the collar and is very time-consuming to remove.  I have found the best way to avoid this when connecting is to leave a little (1/2 mm) of the dialysis needle out of the hole.  The scab then continues to regrow on top.  Also, by day 4 or 5, the scab is so thin, it is easier to scratch through it than to remove it.

Once removed, I feel around the exposed flesh for the entry hole.  When I find it, I poke the small needle lightly into the hole to provide an easy entry for his big brother.  I then insert the large blunt needle into the track, and if all is lined up, it glides effortlessly down the shaft, pushes open the puckered hole in my fistula and settles in place for a few hours’ blood flow.  I tape the needle into place, usually packed up by a rolled up gauze pad, leaving a very small area of the needle shaft showing, and positioning the tip in position away from the internal wall of the fistula for easy flow.

I then do the same for the other needle.

Sometimes there are problems.  My fistula has a habit of moving about under my skin, so that one day the hole lines up with the track and the next day it is over to one side, and I have to chase it.  I do this by feeling this way and that with the tip of the needle (I NEVER push it hard) until either I find it, or I give up and replace arm-friendly Mr Blunt Needle with potentially arm-hostile Mr Sharp Needle.  Hole movement happens naturally over a week or two, and more often when I go to the gym regularly.  I find that exercises aimed at building up my biceps or triceps tend to either build muscle or flesh between the track and the hole or nudge the fistula this way or that, moving the hole away from the tunnel (I call it the Schwarzenegger curse).

I wish someone would invent a fistula hole finder (like the reverse of a stud finder for plaster walls). Life would be sweet and Mr Blunt would prevail.

Removing the needles at the end of the run is simple.  First remove the tape holding it in place, loosen the needle so it is easily moved, then position a small sterile gauze pad over the needle exit.  Simultaneously remove the needle and press the pad firmly onto the fistula hole to stop blood escaping.  Do not Press down on the pad while the needle is still in place.  It hurts, and it damages the tunnel and the hole in the fistula.  The pad should be folded so that it enables focussed pressure on the fistula hole rather than general pressure around the access point.

Once the bleeding stops tape or seal the hole as appropriate.  I use gauze and tape, other use dots.  Buttonhole holes tend to stop bleeding within 5 minutes.  I take off the tapes after a couple of hours.  Other need longer; it depends on you.

Well, that’s it.

Oh, also, as preparation, when I am on my way to each session I spend a few minutes visualising the whole access process.  Then, when I arrive, I am in the right frame of mind to get started.

... http://bigdandme.wordpress.com/2012/07/08/on-dialysis-life-with-the-needle-brothers/

Friday, 06 July 2012 20:05

I'm off in 5 days!

Written by Kamal Shah
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You're not going to believe what else happened after I last updated you about my trip! Two of the three friends who are joining me on the cruise along with their families stay in the US and as you know, the cruise starts from Vancouver in Canada. So, they both needed a Canadian visa as well.

They applied for their visas about a month back. As we were getting dangerously close to the start date of the cruise, we got increasingly worried as they hadn't received their visas. This was a couple of days back. Dinesh visited the Canadian consulate in Seattle where he stays. No luck. They said there was no way they could find out except by sending an email or a fax. They did both. No response.

We immediately got onto a call and started planning for the worst case that they did not receive their visas in time. Chetan found out that they could actually fly in to the place where the ship would dock on the first stop which was in the US so they would not need Canadian visas and they would also disembark at the last stop before getting back to Vancouver. The downside - they would be able to be on the ship for only about three and half days! This would also cost each family about $1,600 more for the flights. But what could we do? We had no choice. 

We decided to wait until Monday and then they would book the tickets.

What I construed as the universe's whispering had by then turned into a full-blown loud message! What was this? The Canadian government's way of telling us we're not welcome? Right from the beginning of this plan, things did not go smoothly. Everything that could go wrong did go wrong! However, the one thing that was positive was that in the end, things always turned out fine. Like with my friends' Canadian visas.

This morning I received an email from Dinesh that read:

Folks,
The visas are approved!
I have Yogita's and my passports in hand. Chetan's and Pavithra's passports are in Express mail expected to arrive at my house tomorrow. We are now unblocked to do next level planning of how we will ENJOY the freakin' vacation.

Seriously guys, thanks for all the help.

--Dinesh
PS: And a note to myself about starting earlier moving forward.
--------

I leave on Thursday.



... http://www.kamaldshah.com/2012/07/im-off-in-5-days.html

Tuesday, 03 July 2012 19:00

Mahabubnagar Diary

Written by Kamal Shah
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One Friday morning I found myself on the Bangalore Highway on the way to Mahabubnagar. NephroPlus has a dialysis center there. This was the district's first dialysis center providing free dialysis through the government's Aarogyasri scheme. Many patients travelled about 100 km each way twice a week just to get dialysis until then!

The road is excellent. Once you take the left fork at Jadcherla and then take the right that goes into the district, the area is especially picturesque and very green. Our center is at the SVS Hospital that is at the mouth of the district.

I complained that I had no shoes until...

At our unit, I chatted with the team and the guests (NephroPlus jargon for patient). It struck me how little some of them had access to. I saw this lady, probably around 65 who had very thin veins. The technicians struggled to cannulate her. She did not utter one word. She did not even complain about the pain which I could sense was immense from the repeated attempts at pricking. She stoically looked on, waiting for it to finish. The technicians gave up in the end as there seemed to be some stenosis (blockage) due to which the minimum flow of the blood was also not achieved. They advised her to go to Hyderabad and get her fistula checked and revised.

I felt really bad for her. Now, she and whoever was looking after her would have to catch some conveyance to Hyderabad (about 100km) and then meet a vascular surgeon who would then advise them what to do. And then they would have to get it done. The surgical procedure was just a small part of the suffering. That the whole effort of getting something as basic as a fistula revision involved so much more trouble seemed quite unfair. I felt my heart become very heavy when I looked at the lady thinking about this.

Truly, I was very fortunate to have the access to medical care I currently have.

Pillalamarri

Mahabubnagar is famous for many reasons. One of the less talked about these days though is the Banyan Tree called Pillalamarri which is supposed to be about 800 years old. Some people say that it is impossible to tell which is the main tree as there are many 'children' of the tree that have grown around it. Beneath the tree is supposed to be the tomb of a Muslim saint. 

We visited the site a few trips back. It was totally deserted barring the one old man who manned the ticket collection room with a single window through which he would issue the tickets to the enclosure. We took our tickets and went in. It was a maze of trunks. The funny thing was until someone tells you that the trunk of the original was not identifiable, you don't think about it! One thing was for sure, the tree was really old.

Telangana Agitation

Mahabubnagar is represented in Parliament by K Chandrashekhar Rao, the president of the Telangana Rashtra Samithi,the party that is at the forefront of the agitation for a separate state of Telangana. The area is a hotbed of activity related to this agitation. Most bandhscalled in support of this cause are successful. During the setting up of our unit, the agitation was totally alive and kicking because of which we did have a few days of disruption - government officials would not attend duty, doctors would stay away from work etc. These days however, it looks like things are more peaceful. We've not had such problems for a while. Once the Presidential elections are completed, however, people expect some move on this front. No one is really sure about which direction the movement will take from then on. Fingers crossed!

Avanthi Udupi Hotel

I went over to the main town to have lunch at the usual Avanthi Udupi Hotel. The place serves simple South Indian meals. Nothing very fancy. But still very tasty. It is the typical South Indian Meals place complete with the sweets counter near the billing desk, a small air-conditioned section, a small Family section, the outer area for the rest of the customers and the huge weighing machine outside that has all the lights and fancy colors, into which you insert a one rupee coin and it throws out a small card with the weight printed on it!

... http://www.kamaldshah.com/2012/07/mahabubnagar-diary.html

Monday, 02 July 2012 19:00

In you we trust - 11

Written by Kamal Shah
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(This is the last part of a fictional short story - In you we trust. You can find the first part here.)


Aparna got a transplant a couple of months after that call. The transplant was a success. She would not need dialysis any more. Her brother was a good match. Her brother and family had come down to Bangalore and took very good care of her. Her sister-in-law was very loving and she took care of Aparna like her own sister. In moments of weakness, she would tell Aparna that they would feel so guilty every time they talked to her over phone from the US. But their situation was so horrible that they had no choice. Luckily for them, there was a change in rules around that time and they could come back to India without losing the opportunity to go back when they wanted.


The family was now perfect. They had beautiful moments together. Within a year, Aparna, her brother and his family moved to the US. Aparna took up a job which wasn't too stressful. It kept her busy. She liked what she did. Her health kept good too.


Epilogue


About a year after they moved to the US, Aparna got an email from Dr. Jha. It read:


Dear Aparna,


Hope things are going well for you. I trust that you are taking good care of your health. I am sure your blood test values are well under control.


Aparna, I wanted to update you about an unfortunate incident that happened at Charaka recently. You remember the technician Prakash. Poor guy, he unfortunately had an accidental prick with a Hepatitis C positive patient's needle. This was about seven months back. He was a nervous wreck all these months. He would get himself tested every month. A couple of days back, his report came out positive.


Prakash was shocked. We had to relieve him of his duties immediately as Charaka does not allow positive employees to work. Luckily we have a couple of other technicians we hired a few months back who are also good.


Prakash has gone back to his village. Before going, he came to me one last time and said remorsefully,  "I guess my karma caught up with me Doctor. I still remember what I did to Aparna. I was so immature and foolish. More than foolish, I think I was plain evil. What I did was so wrong. I will never forgive myself for doing that. And what has happened to me serves me right. What else could I expect after what I did?"


I am writing this email to you to advise you not to harbor any rancor towards Prakash, Aparna. He has been punished enough for his misdeed.


Take care.


Sincerely,
Suketu Jha


A tear rolled down her cheek. She immediately wiped it off. Her brother caught her before that however. "What happened?", he asked. She showed the email to him.

"Serves the bastard right!" he exclaimed.

"No, don't say that." Aparna replied. "No one should get infected like that. No one. Not even Prakash!"

... http://www.kamaldshah.com/2012/07/in-you-we-trust-11.html

Sunday, 01 July 2012 19:00

In you we trust - 10

Written by Kamal Shah
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(This is the tenth part of a fictional short story - In you we trust. You can find the first part here.)


It was around 9 a.m. about a week after Aparna had gone to meet the CEO of Charaka. Aparna's cell phone rang. It was Dr. Jha. Aparna had moved to another hospital which was much farther away from her house. Dr. Jha had called to tell her that the hospital had decided to conduct an internal inquiry into the whole episode. The inquiry would be conducted by a committee of three doctors. The committee did not include Dr. Jha. The committee would have to submit its report to the CEO within 4 weeks.

Aparna did not know what to make of it. A committee formed out of the doctors working in the hospital itself?! What would that yield? When she heard the names of the doctors, her concerns somewhat reduced because they were reputed in their fields. However, she was by no means sure that justice would be done at the end of the day. Yet, she thought it would be prudent to wait before taking any further action.

The committee spent the next few weeks talking to all concerned - Aparna, Prakash, Dr. Jha, the other staff at the unit. The four weeks passed by fast. The committee submitted an 18-page report to the CEO at the end of it. The summary was on expected lines. No evidence to prove that Prakash had willfully infected Aparna with the virus was found. Prakash confessed to playing a prank on Aparna by saying that there was a mix-up in the reprocessing unit. For this, he was severely reprimanded. He was given a 50% salary deduction for the next six months. Dr. Jha was also advised to get another technician on board quickly so that over-dependence on one person could be avoided.

Dr. Jha called Aparna and told her of the report. He put it as if Aparna had won the case! "50% salary penalty for Prakash!", Dr. Jha exclaimed when he called her. It sounded like Prakash was going to be hanged!

Aparna was disappointed. Though she hadn't expected much more from this whole exercise, the result meant the problem was not over. She would need to fight some more, if she could, of course.

Aparna went to Charaka the next day and met Dr. Jha. She told him she was not satisfied with the results of the inquiry. She strongly believed Prakash was responsible. 50% salary deduction for a while meant nothing. When Dr. Jha told her about the prank, it sounded ridiculous. A ploy to let him get away with a light sentence.She told Dr. Jha, "You don't realize what has happened Doctor. My life has been destroyed. And you all are simply covering up a crime committed by your staff." Dr. Jha reasoned with her saying, "Aparna, many patients turn positive in dialysis units. You are not the first and you will certainly not be the last!"

"I don't care about other patients, Doctor. How did Prakash know about this a whole seven months before the report came positive?"

Dr. Jha had a Eureka moment. "That's the key Aparna! Seven months! The HCV virus is in incubation for 4-6 months. This happened after seven months, you see! So, Prakash is innocent!"

"Those numbers are never exact. Dr. Jha. Six months, seven months. How different are they in medicine? You should know better than that! Whatever happens, I am going to see to it that Prakash is punished for what he has done to me."

"Aparna, I totally understand what you're going through. In your interest, let me advise you. Get on with your life. Let us start Anti-HCV treatment. Don't waste your time pursuing this case. No one can prove these things in medicine. Especially in India."

Aparna had read up a lot about HCV cross infections on the internet in the past few weeks. She realized that it would be difficult to prove these things beyond reasonable doubt. Still, she did not want to give up. She felt like Prakash had slapped her on her face and was getting away with it. Her independent thinking and upbringing did not allow her to give up so easily.

What were her options now? Going to the police? Going to a lawyer? Going to the Medical Council of India (MCI)? All three options seemed hopelessly strenuous, complicated and ineffective. She had no energy to go to the courts month after month testifying in the hope that she would win a case that had so much stacked against her.

For a dialysis patient, each day is a struggle. Merely going about her daily routine - cooking, work, housework, dialysis was a huge task. She could barely make it through her day unscathed. She simply wasn't ready for an additional burden of fighting for justice. She badly wanted Prakash to be given a much more severe punishment. More than the desire for justice, it was so that she wouldn't need to fight any more. She simply did not have the energy. Physically and mentally.

Aparna sat brooding in her TV room at home that evening wondering what to do. She wanted a way out. Just then her brother called.

"Apu, how are you?"

Aparna burst into tears. She was feeling very overwhelmed. She couldn't take it any more. She needed help.

"Apu, stop crying. I am coming home, Apu. We'll get you a transplant. I will give my kidney. Stop crying, please. I am coming home!"

Aparna suddenly felt a huge burden being taken off her shoulders. More than the fact that she would be getting a transplant, the whole thing about having someone look after her offered great relief. She wouldn't have to deal with this alone any more.

... http://www.kamaldshah.com/2012/07/in-you-we-trust-10.html

Saturday, 30 June 2012 19:00

In you we trust - 9

Written by Kamal Shah
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(This is the ninth part of a fictional short story - In you we trust. You can find the first part here.)


Dr. Jha looked at the report gravely. He then looked up and asked Prakash, "What exactly happened?"

Prakash replied, "Nothing sir. I was just playing a prank on Aparna madam. I promise, sir. Nothing like that happened. I take the utmost care to make sure these things don't happen. You know that na, sir?"

Dr. Jha said, "Yes, I know Prakash. I trust you completely. But do you realize what you have done? Aparna is not going to take this easy. She will create hell for you - and me! The police is not going to believe you when you say it was all only a prank."

"Police? Why police, sir? Why will the police get involved in a medical matter?"

"Well, it is no longer simply a medical matter. You told Aparna that a mistake was made and now she has turned positive. What else do you expect from her? What do you expect from anybody? Heck, even I would go to the police!"

Prakash was shocked. He did not know what to do or how to react. He was seeing his entire career and life being destroyed in front of his eyes for no fault of his and he could not do anything about it.

"When will she come next?"

"Tomorrow."

"Ask her to meet me when she comes."

The next day, Aparna knocked on Dr. Jha's door. "Come in", Dr. Jha beckoned.

"Sit down Aparna."

"Good morning Doctor!"

"How are you doing Aparna?"

"I am fine Doctor, thank you. Prakash said you wanted to meet me?"

"Yes. I wanted to meet you. So, Aparna, your Hepatitis C report has come positive. While I understand this might be disturbing for you, I must also tell you that this is not a very big thing. This disease takes 10, 15, sometimes 20 years for any symptoms to show up. And that is if we do not treat it. These days there are some very good treatments available and most probably we should be able to eliminate the virus."

Aparna was shocked. As Dr. Jha said the last few words, tears started rolling down her cheeks. She immediately pulled out a handkerchief and wiped them off.

The tears gave way to rage however.

"How did this happen Doctor?"

"Aparna, I know it sounds horrible but to tell you the truth, these things happen in dialysis units in our country. We have still not been able to eliminate cross infections. Whatever we do, patients invariably turn positive every now and then."

"No Dr. Jha. In my case it did not happen just like that. It was done intentionally. He wanted to take revenge. He wanted to teach me a lesson. You know that Doctor!"

"Aparna, you're being unreasonable now. I understand you are going through hell right now. Please take care of yourself. I know, right? Many patients turn positive. It is nothing that Prakash did." Dr. Jha did not want to mention the prank. It would not be right at this point, he thought.

"I am not going to take this lying down Doctor. No way!"

"I can only advise you Aparna. It is your decision after all. You need to take good care of yourself."

"Thanks Doctor. I will leave now."

Aparna got up and left.

A flood of emotions hit her. Anger, confusion, despair, frustration. Prakash has done this for sure. I will not let him get away with it. I will see this to its logical end.


The next day, Aparna sought an appointment with the CEO of Charaka Hospital, Dr. Raghunatha Doraisamy.

Dr. Doraisamy was a cardiologist with over tweny five years of practice. He had started Charaka Hospital about four years back. He was a very reputed doctor and Charaka became quite famous in a short span of time. He had a good circle of friends from among doctors and he enlisted quite a few of them to join his hospital over time.

Aparna explained the sequence of events to him. He gave her a patient hearing. At the end of it, he said, "Ma'am, I am very sorry that this happened to you. I assure you that I will enquire into this personally and get back to you."

He took down her telephone number. Aparna left with some hope that some action would be taken.

That afternoon Dr. Doraisamy called up Dr. Jha and requested him to come over to his office. Dr. Jha immediately guessed that it was about Aparna. He reached the CEO's office immediately. Dr. Doraisamy told him that Aparna had come that morning and complained about the technician in the dialysis unit. She accused him of wilfully infecting her with the Hepatitis C virus.

"What is the truth?", Dr. Doraisamy wanted to know.

"I know the boy, Doctor", said Dr. Jha. "He would never do such a thing. It was only a prank." Dr. Jha went on to explain the sequence of events to the CEO.

Dr. Doraisamy realized that something needed to be done. If at all Aparna went to the press, they would be in trouble. The press does not verify the facts. They would not bother with the reality that Heptitis C infections are common in dialysis units. He visualized the headline in the papers the next day, "Dialysis patients get Hepatitis C at Charaka".

"Can we fire the guy?", Dr. Doraisamy asked.

"We found him with great difficulty Doctor. He is very good at his work. We will find it very tough without him."

"Tough or impossible?"

"Very tough Doctor!"

"What do you suggest we do?"

"Give me some time Doctor. Let me think about it."

"Take until tomorrow Dr. Jha. But this girl is not going to keep quiet. We will need to show that we have done something."

"Sure Doctor."

Dr. Jha was at a loss. He could not lose Prakash. He also realized that they had to do something about it. What would satisfy Aparna without letting Prakash go?

... http://www.kamaldshah.com/2012/07/in-you-we-trust-9.html

Friday, 29 June 2012 19:00

In you we trust - 8

Written by Kamal Shah
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(This is the eighth part of a fictional short story - In you we trust. You can find the first part here.)


Prakash found Aparna very depressed these days on dialysis. He secretly seemed happy at her plight. Serves you right! Next time think twice before attempting to insult me. He recollected how he cooked up the whole story about the mistake in the reprocessing unit. He just wanted to scare her for a bit. After a few months, when the reports would consistently come out negative, she would be ok. So no harm was being done. At the same time, he felt he was only dispensing justice. She did it only to insult him. So, she needed to be taught a lesson. And anyways, it was not as if he had really infected her with the virus. So it was all ok.

Unfortunately, Prakash had horribly underestimated the mental trauma he was putting Aparna through.

Month after month, Aparna would dread the first week when the blood would be drawn. The next 24 hours would be absolute hell until the reports came back. There would be temporary relief for a couple of weeks and the countdown to the beginning of the month would start all over again. Many times, Aparna considered ending it all. She could bear it no more. However, every time, she fought those depressing thoughts and said to herself, "I have not turned positive yet, right? If I ever do, then we'll see." and got herself back on track.

It was about seven months since Prakash had first broken the news about the possible infection to her. It was the beginning of the month again. Prakash drew the sample and sent it to the lab. By now Aparna was also less anxious about the results. This had been going on for so many months now. And the result was always negative. The rest of the session was uneventful. She requested Prakash to call her as usual and let her know when the results came back and left for home.

The next morning, three results came from the lab and Prakash opened the envelopes one by one to check the values. One Hemoglobin was only 6.8. He made a mental note to let Dr. Jha know. His Erythropoietin probably needed to be increased.Another patient's Potassium was 6.5. Too much fruit! The next report was Aparna's. HCV Negative,he muttered as he opened the report. The report said Positive! Prakash was shocked. How could that be? How could she turn positive? That was all a prank! Her dialyzer was not mistakenly reprocessed in the positive machine!


He was convinced it was wrong. He called the lab and blasted them. He said they had probably mixed the samples with someone else's. The lab was defiant. "No way!", they said. He said he would be sending a repeat. "Sure!", they responded.

How would he tell Aparna this? He felt the ground slipping from beneath his feet. He started sweating profusely. He sat down on a chair and started thinking about what he should do. My career is finished. Aparna will definitely complain to Dr. Jha and the hospital. They will suspend me. No hospital will take me. What have I done?!He then regained composure and told himself, I haven't really done anything. Relax. I have not made any mistake. I did not reprocess Aparna's dialyzer in the positive machine.


The whole sequence of events caused him to believe, at the back of his mind, that he had actually done something wrong, that he had actually infected Aparna's dialyzer with the virus.

He decided that he would send a repeat sample. The problem however was how he would tell Aparna about this? He would not be able to take a sample without her knowing. Prakash decided that he would say that the earlier sample got spoilt due to faulty storage and they couldn't do the test.


Aparna came the next day and Prakash seemed unusually tense and in a hurry. Prakash told her that the sample they had drawn last time got spoilt and they would need to send it again. Aparna was too tired that day to react. "Sure", she said and the sample was sent. This time, Prakash called the lab and asked them to be very careful with the sample and give him an accurate result.


The result came back the next day. Positive. Prakash was devastated.

... http://www.kamaldshah.com/2012/06/in-you-we-trust-8.html

Thursday, 28 June 2012 19:00

In you we trust - 7

Written by Kamal Shah
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(This is the seventh part of a fictional short story - In you we trust. You can find the first part here.)

Hepatitis C is a scourge in dialysis units today. Many patients become Hepatitis C positive a few years into dialysis. The indolent nature of the disease has caused not enough attention to be given to it. Medical proessionals are more focussed on immediate problems that dialysis patients face. A disease that takes about a decade to start showing clinical symptoms is not very high on the priority list of nephrologists.

Left untreated, the disease can cause Liver Cirrhosis, Liver Cancer and Liver Failure in about twenty years in non-dialysis patients. In dialysis patients this period is about ten years. Still, ten years is a long time for a dialysis patient.

Many dialysis patients do not even know about the danger of getting cross-infected with Hepatitis C in their dialysis units. It hits them only when they turn positive. Like other chronic conditions, this is also something that 'cannot happen to me'!

Despite all her knowledge about kidney disease Aparna was ignorant about Hepatitis C. All she knew was 'positive patients' had to dialyze in a separate area. She hadn't bothered to find out more about the disease. 'It cannot happen to me', was what she thought too.

One morning, as Prakash started Aparna's session, Aparna noticed him drawing a blood sample for an investigation. She had not asked for any test. Why was he drawing a sample, then? He asked Prakash. Prakash said he was dawing a sample for Hepatitis C testing. Aparna asked him why he was doing that when they had sent the sample in the first week of the month as usual and it was already negative.

Prakash was fumbling as he answered. He said something about some mistake being committed in the Reprocessing Unit, about some mix up happening, about her dialzyer being mistakenly reprocessed in the positive reprocessing machine.

Aparna was apalled. Though she did not know exactly what had happened, it sounded horrible. She had a very disturbed session that day. She started imagining all kinds of horrible things happening to her. The word 'positive' has a very negative connotation. Though people on dialysis who are Hepatitis C positive will very likely not be affected by the disease, a whole lot of other issues crop in.

Aparna got on to the internet and read up all she could about Hepatitis C in dialysis patients. The fact that there wouldn't be any symptoms for years offered no consolation. She had plans of living for long on dialysis and this could mess things up a lot. She started doubting Prakash's role in this. The guy probably hates me. He might have done this just to get back at me. But then she thought that may not be true. No one can fall to that level. Not even Prakash. He has an ego but he will not stoop to a level where he would play with someone's health.

The report came back negative. Aparna was relieved. However it was not all over yet. The Hepatitis C virus can be in a so-called incubation period for months. Every month, Aparna would have to undergo the test to make sure she has not turned positive. At least for another 4-6 months.

Aparna was quite disturbed with the recent turn of events. At the back of her mind she had this nagging doubt that this was done on purpose by Prakash. She wasn't convinced however. She thought no one could do such a thing. She was wondering if she should talk to Dr. Jha about this. She debated this for a while. Maybe Dr. Jha could do something about the virus in the incubation period if it was already there? Maybe some additional tests might help check on this? She decided to talk to him eventually.

Dr. Jha appeared quite unfazed when she talked to him. He offered rather blandly, "Aparna, let us not assume anything until we get a positive result."

Aparna got a little worked up.

"But Doctor, what if I have really been infected? What if the virus is in the incubation period?"

"I would strongly advise you not to stress yourself too much with this. Let us repeat the test every month and see."

Aparna was disappointed. Dr. Jha hadn't been very helpful.

That evening, while watching TV at home, her brother called her. For the first time in many months, she broke down. Her brother felt helpless. He wanted to help her but could do nothing. He was stuck in a job in the US and couldn't return to India for another year. After the call as well, she put her head in her pillow and cried bitterly for about an hour. She felt very lonely and desperately wanted some support. She felt it was totally unfair for her to deal with all this all by herself. All her friends had got married and had loving and caring husbands. Some even had kids. And here she was, all alone in this world having to deal with this disease. She had come to terms with the dialysis bit. But this whole new Hepatitis C angle to it left her very scared.

... http://www.kamaldshah.com/2012/06/in-you-we-trust-7.html

Wednesday, 27 June 2012 19:00

In you we trust - 6

Written by Kamal Shah
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(This is the sixth part of a fictional short story - In you we trust. You can find the first part here.)


Aparna used to read up a lot about her condition. She also read up a lot about dialysis. She was a  member of an online forum of dialysis patients too where she would get a lot of information about the dialysis process and the various factors involved in it. Over the months she had developed a very good understanding of the concepts involved. She was completely on top of her dialysis settings and would insist that she dictate the parameters rather than the technicians.

Prakash, on the other hand, got all his dialysis knowledge from practice. For the past so many years, he had encountered many situations which helped him to handle most complications fairly well. However, his theoretical background was weak. The diploma he had done was like most other diplomas in the city. Theory was rarely taught. The students were simply expected to come to the unit and then learn the practical aspects of dialysis from the seniors. They did what the seniors did. If some senior learnt something the wrong way many generations back, chances are that several generations of dialysis technicians down the line were repeating the same mistake.

For the past few weeks, Aparna noticed something peculiar about an elderly male patient who used to generally be taken in the bed opposite to her on the same days as her, in the same shift as her. He would come in with barely a liter of extra fluid but about halfway into the session, he would get severe cramps. The technicians were simply not able to pull off even that minimal amount of fluid. This baffled even Prakash. Aparna had an idea. But she was wondering how she could tell Prakash.

Aparna knew exactly how Prakash would react. He was the kind of guy who would feel so belittled if someone else gave him an idea in his field of expertise that actually worked. It would be much worse if that someone was a patient. And even worse if Aparna gave that idea. Aparna realized this. But she couldn't let the patient suffer any more!

"Increase the conductivity!" she shouted out as Prakash was discussing the problem with the junior technicians while starting the man's session.

Everyone turned to look at her. Prakash's face turned red. The juniors turned to look at Prakash. The patient looked at Aparna and then at Prakash. Aparna regretted it instantly. What have I done?


Prakash burst out laughing. He shook his head in disbelief. There was silence all around. He did increase the conductivity however. He increased the Prescribed Sodium setting. The conductivity came up to about 14.5 in a few minutes. Prakash kept returning to the patient to check if he was cramping. He was doing quite well. The fluid was all successfully removed. For the first time. Aparna was also keeping an eye on the patient. She was happy to see that the fluid was removed as well. She knew what keeping extra fluid on meant. Prakash did not talk to Aparna that day. He closed her session. But did not say a word.

Prakash went home that night very dejected. Why didn't I think of that? There was nothing great in what she suggested. It was not a new medical discovery. It was the obvious solution. But still, why didn't I think of that? She is not even qualified in dialysis. She has no experience. She is only a patient. How did she think of that and why didn't I?


He recollected all the nice things patients said about him. They treated him like God. They brought gifts for him. He thought about all the times he thought of innovative solutions to the issues patients were having on dialysis and how he had relieved them of their problems. He kept picturing himself cannulating different patients. He remembered patients allowing only him to cannulate. It felt good. It felt good to have so many people look up to you. It felt good to have so many people revere you.

And then there was this patient. What did she think of herself? Who did she think she was? Telling me what to do! Look at her guts. The way she shouted out in front of everyone. She wanted to insult me. That was her only intention. She had no interest in the patient. All she wanted to do was to insult me. The bitch! She must be taught a lesson. A lesson she would never forget.



... http://www.kamaldshah.com/2012/06/in-you-we-trust-6.html

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