Thursday, 23 June 2011 09:40

Porphyria Cutanae Tarda?

Written by  Kamal Shah
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Huh?

Well, that's what they suspect my recent skin condition to be!

My skin has become increasingly brittle. It cuts very easily. Barely do I scrape against a wall and my skin gets cut. I also get small blisters on my hands and feet from time to time. Yuck!

So, I showed them to my nephrologist and he asked me to see a dermatologist. The dermatologist carefully examined my hands and suspected that this could be Porphyria Cutanae Tarda, a condition commonly found among people with long term kidney disease.

I have been asked to get tested for the presence of Uroporphyrins which will confirm this diagnosis. The problem is this test is done in very few places in India. I am trying to see if I can get it done at AIIMS, New Delhi.

If the diagnosis is confirmed, then I might be put on Chloroquin, the drug used in Malaria. Wikipedia says with Chloroquin the condition usually settles in 6-12 months.

Well, whatever it is, at least I have a condition that has a fancy sounding name! Kinda cool, you know - Porphyria Cutanae Tarda! Heck, there is even a song by that name - see the second song in this album!

... http://www.kamaldshah.com/2011/06/porphyria-cutanae-tarda.html

Kamal Shah

Kamal Shah

Hello, I'm Kamal from Hyderabad, India. I have been on dialysis for the last 13 years, six of them on PD, the rest on hemo. I have been on daily nocturnal home hemodialysis for the last four and half years. I can do pretty much everything myself. I love to travel and do short weekend trips or longer trips to places which have dialysis centers. Goa in India is a personal favorite. It is a great holiday destination and has two very good dialysis centers.

E-mail: This e-mail address is being protected from spambots. You need JavaScript enabled to view it

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