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This teenager went from playing in a county final to kidney dialysis within days - Irish Examiner PDF Print

Claire Dolan lived for football until she learned one of her kidneys was defunct. Within days she had to swap college and football for dialysis and a waiting game, says Arlene Harris

CLAIRE Dolan, 21, had no idea two years ago, when she was enjoying college life, that she would need an organ donation.When it was discovered that she had an undeveloped kidney, the Westmeath woman became reliant on the kindness of strangers to give her a new lease of life.

“On September 15, 2012, I fell ill during football training,” she says.

“It was two days before our county final and I had been fine when I arrived, but as soon as I started warming up, got an awful pain across my abdominal area. My trainer took me aside and got me to do a few jumps, which can indicate appendicitis. But he wasn’t sure what was wrong, so rang my Dad to bring me home.”

Claire’s mother, Margaret, is a nurse, so after checking her daughter, she gave her painkillers and put her to bed. Margaret said she would take Claire to the doctor the following morning if she wasn’t any better.

“The next day, the pain was still severe, so my Mum brought me to Midoc, in Athlone, where I was referred to A&E,” says Claire.

“At Tullamore Hospital, I had bloods taken and an ultrasound revealed that one of my kidneys wasn’t developed at all. I didn’t have any signs that I was effectively living on only one kidney, as I never felt unwell a day in my life, so it all came as a big shock to me,” Claire says.

When results of her blood tests and various scans came back, Claire was diagnosed with kidney failure. She would have to start dialysis and go on the waiting list for an organ transplant — it was a lot for the teenager to comprehend.

“I was only 18 when I was diagnosed, so didn’t really have any idea what my condition entailed or what was going to happen to me, so it was quite traumatic and upsetting for both me and my parents, brothers and sister,” she says.

“I had to start dialysis as soon as possible and I felt very emotional, but my parents were extremely supportive and found out everything I needed to know from the doctors.

“I deferred my college year in Sligo, where I was studying at the time, and started dialysis in the beginning of January, 2013. I found it hard at first, especially with the tube being inserted into my stomach, but I got used to it, as I had to have it done daily.

image

“So, after a while, I got on with my life; I reapplied to college and went back in September, 2013 — I even returned to play football with Moate ladies’ GAA, because I was determined the dialysis wouldn’t stop me from living normally,” Claire says.

But Claire didn’t want to be on dialysis for the rest of her life, so, like many other people around the country, she waited for the call that would change her world.

“In May, 2014, I finally got called for my transplant,” she says.

“I felt so many emotions, from happiness to sadness and fear, but I just wanted to get on with it. The operation lasted over two hours and I was in hospital for 10 days afterwards.

“I felt better straight away and was up and about and eating and drinking well. After I was discharged, I was told to rest for a few weeks, and now, nearly nine months on, I have never felt better in myself.

“My health and fitness feel great and the transplant has given me a new lease of life. I can now do things I hadn’t been able to do for over two years. So it’s great to know I am now healthy and can live the rest of my life freely.

“The experience has really changed my life and I have so many people to thank for it. It really is the gift of life.

“If I could give advice to anyone in my situation, I would say ‘never give up’. Don’t let it stop you from achieving your dreams and goals. My goal was to get back playing football and I am. It’s important to let people help and to take every day as a stepping stone.

“It may seem like a very dull time in your life, but do not forget that there is light at the end of the tunnel and think of it like a race you are running and when you get to the finish line you will feel fantastic and brave for achieving what you did.

“Do not give up and stay positive and strong. It is amazing what you gain when you do,” Claire says.

Organ Donor Awareness Week takes place from March 28 to April 4. For more information, visit www.ika.ie

 

Shortfall in the number of donated organs

There are more than 700 people in Ireland awaiting life-saving heart, lung, liver, kidney and pancreas transplants.

Thanks to the gift of organ donation, more than 3,000 people in Ireland are enjoying extended life.

In 2014, the number of deceased donors fell compared to 2013, so there is a shortfall in organs.

251 transplants were performed, last year thanks to 63 deceased donors and 40 living donors.

Though this transplant figure is lower than in 2013, it was the third-highest ever.

In 2014, 40 living kidney transplants took place at Beaumont Hospital and 18 heart transplants were performed at the Mater Hospital, along with 31 lung transplants.

Funding of €3m has been approved for the HSE’s Organ Donation and Transplant Office to develop infrastructure for organ donation and transplantation.

READ MORE: Saoirse Perry: ‘I was too sick to be scared about transplant’

...

 
Claire's journey from county final to kidney dialysis reveals need for organ ... - Irish Examiner PDF Print

Claire Dolan lived for football until she learned one of her kidneys was defunct. Within days she had to swap college and football for dialysis and an awful waiting game, writes Arlene Harris.

CLAIRE Dolan, 21, had no idea two years ago, when she was enjoying college life, that she would need an organ donation.When it was discovered that she had an undeveloped kidney, the Westmeath woman became reliant on the kindness of strangers to give her a new lease of life.

“On September 15, 2012, I fell ill during football training,” she says.

“It was two days before our county final and I had been fine when I arrived, but as soon as I started warming up, got an awful pain across my abdominal area. My trainer took me aside and got me to do a few jumps, which can indicate appendicitis. But he wasn’t sure what was wrong, so rang my Dad to bring me home.”

Claire’s mother, Margaret, is a nurse, so after checking her daughter, she gave her painkillers and put her to bed. Margaret said she would take Claire to the doctor the following morning if she wasn’t any better.

“The next day, the pain was still severe, so my Mum brought me to Midoc, in Athlone, where I was referred to A&E,” says Claire.

“At Tullamore Hospital, I had bloods taken and an ultrasound revealed that one of my kidneys wasn’t developed at all. I didn’t have any signs that I was effectively living on only one kidney, as I never felt unwell a day in my life, so it all came as a big shock to me,” Claire says.

When results of her blood tests and various scans came back, Claire was diagnosed with kidney failure. She would have to start dialysis and go on the waiting list for an organ transplant — it was a lot for the teenager to comprehend.

“I was only 18 when I was diagnosed, so didn’t really have any idea what my condition entailed or what was going to happen to me, so it was quite traumatic and upsetting for both me and my parents, brothers and sister,” she says.

“I had to start dialysis as soon as possible and I felt very emotional, but my parents were extremely supportive and found out everything I needed to know from the doctors.

“I deferred my college year in Sligo, where I was studying at the time, and started dialysis in the beginning of January, 2013. I found it hard at first, especially with the tube being inserted into my stomach, but I got used to it, as I had to have it done daily.

image

“So, after a while, I got on with my life; I reapplied to college and went back in September, 2013 — I even returned to play football with Moate ladies’ GAA, because I was determined the dialysis wouldn’t stop me from living normally,” Claire says.

But Claire didn’t want to be on dialysis for the rest of her life, so, like many other people around the country, she waited for the call that would change her world.

“In May, 2014, I finally got called for my transplant,” she says.

“I felt so many emotions, from happiness to sadness and fear, but I just wanted to get on with it. The operation lasted over two hours and I was in hospital for 10 days afterwards.

“I felt better straight away and was up and about and eating and drinking well. After I was discharged, I was told to rest for a few weeks, and now, nearly nine months on, I have never felt better in myself.

“My health and fitness feel great and the transplant has given me a new lease of life. I can now do things I hadn’t been able to do for over two years. So it’s great to know I am now healthy and can live the rest of my life freely.

“The experience has really changed my life and I have so many people to thank for it. It really is the gift of life.

“If I could give advice to anyone in my situation, I would say ‘never give up’. Don’t let it stop you from achieving your dreams and goals. My goal was to get back playing football and I am. It’s important to let people help and to take every day as a stepping stone.

“It may seem like a very dull time in your life, but do not forget that there is light at the end of the tunnel and think of it like a race you are running and when you get to the finish line you will feel fantastic and brave for achieving what you did.

“Do not give up and stay positive and strong. It is amazing what you gain when you do,” Claire says.

Organ Donor Awareness Week takes place from March 28 to April 4. For more information, visit www.ika.ie

Shortfall in the number of donated organs

There are more than 700 people in Ireland awaiting life-saving heart, lung, liver, kidney and pancreas transplants.

Thanks to the gift of organ donation, more than 3,000 people in Ireland are enjoying extended life.

In 2014, the number of deceased donors fell compared to 2013, so there is a shortfall in organs.

251 transplants were performed, last year thanks to 63 deceased donors and 40 living donors.

Though this transplant figure is lower than in 2013, it was the third-highest ever.

In 2014, 40 living kidney transplants took place at Beaumont Hospital and 18 heart transplants were performed at the Mater Hospital, along with 31 lung transplants.

Funding of €3m has been approved for the HSE’s Organ Donation and Transplant Office to develop infrastructure for organ donation and transplantation.

READ MORE: Saoirse Perry: ‘I was too sick to be scared about transplant’

...

 
Treatment, Disease Management Helping Dialysis Patients Live Longer - Monthly Prescribing Reference PDF Print
March 30, 2015 Treatment, Disease Management
Treatment, Disease Management

(HealthDay News) — New statistics suggest that kidney patients on dialysis are surviving longer. The study was presented Thursday at a National Kidney Foundation meeting in Dallas.

"Declining mortality rates are the clearest evidence of improving outcomes in dialysis patients," lead researcher Eric Weinhandl, principal investigator with the Peer Kidney Care Initiative in Minneapolis, said in a news release from the National Kidney Foundation. "The transition to dialysis is difficult, both physically and psychologically," Weinhandl said. "However, clinical outcomes on dialysis are improving and patient survival is increasing."

Researchers found that death rates fell in dialysis patients who were treated in freestanding facilities. The death rates fell by 15% in the first year of treatment in new patients, and by about 19% in continuing patients. Weinhandl said there are probably many reasons for the decline in death rates, including better drug-based management of heart disease, higher vaccination rates, and changes in treatment of anemia. The decline also coincided with the advent of new treatment guidelines for kidney disease.

"It is gratifying to see patients living longer on dialysis," Kerry Willis, PhD, chief scientific officer of the National Kidney Foundation, said in the news release. "Improved practice means that people are initiating dialysis in a generally healthier state, which leads to better long-term outcomes for kidney failure patients."

Press Release
More Information

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Chhattisgarh doctor to present portable dialysis jacket at Nephrology ... - NYOOOZ PDF Print

RAIPUR: A portable `jacket bag`, which could possibly replace the bulky stationary dialysis machines in hospitals, designed by Chhattisgarh`s Dr Puneet Gupta is going to be a part of the presentation at the forthcoming 2015 Nephrology Conference in the US. Dr Gupta, who heads the Nephorology Department at Dr BR Ambedkar Memorial Hospital here, has been invited to the conference, slated in September, to present his research work to over 250 top nephrologists from across the globe. The jacket, which operates on a battery weighing less the 10 kgs, could prove a boon for dialysis patients due to its compact size and unlimited portability.

Talking to TOI about his research work, Dr Gupta said he has been working on the project since 2012 with an aim to develop compressed dialysis equipment that is seamlessly portable. He said the design of the jacket is complete and is likely to be available in the market in a year or so. Dr Gupta said patients have to usually visit hospitals two to three times a week for dialysis and have to be confined to the machine.

However, the `jacket` can be worn and used by the patients anywhere, avoiding their trips to the hospital. He said he has submitted his work to ethical committee for animal trial and once it is approved it would be tested on human beings. "This jacket can significantly improve quality of life for patients", he said adding that while conventional dialysis require at least 230 litres of water per patient dialysis.

The jacket merely uses one litre water and can be recycled too. Claiming that the `jacket` would be a cost effective alternative for kidney patients, Dr Gupta said while dialysis are free of cost in government hospitals, private hospital charges almost Rs 1600- 2300 per setting and Rs 1200 for disposable too. "Roughly a patient spends Rs 30,000 to Rs 40,000 on dialysis in private hospitals whereas th...

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Recapping Finalized 2015 Rules from CMS on Medicare Payments - RevCycleIntelligence.com PDF Print

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