Tuesday, 22 March 2011 20:09

Atypical HUS Patient conference at Newcastle

Written by  Kamal Shah
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The Center for Life at Newcastle upon Tyne, UK, is organizing a conference for patients and their family on atypical Hemolytic Uremic Syndrome on Saturday, June 11th. This is a great initiative by Dr. Tim H. Goodship, whose lab found out that I had the CFH/CFHR1 hybrid gene due to which my kidneys failed and my transplant did not work out.

Dr. Goodship is one of the world's leading researchers in atypical HUS and it is great that he is organizing this conference. So little is known about this disease that patients and their families are often grappling with ignorance alongside the disease itself.

The conference will cover the basics of the disease, the complement system and treatment options including liver transplants and eculizumab. The conference is also going to set up a support group for patients and their families in the UK. More details can be found here.

... http://www.kamaldshah.com/2011/03/atypical-hus-patient-conference-at.html

Kamal Shah

Kamal Shah

Hello, I'm Kamal from Hyderabad, India. I have been on dialysis for the last 13 years, six of them on PD, the rest on hemo. I have been on daily nocturnal home hemodialysis for the last four and half years. I can do pretty much everything myself. I love to travel and do short weekend trips or longer trips to places which have dialysis centers. Goa in India is a personal favorite. It is a great holiday destination and has two very good dialysis centers.

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